Today was a good day

Today was a good day until I went in the dressing room to try on a cute outfit and well all I see is bruises on my legs ugh guess I will be in Capri pants all summer on a good note I was happy I could shop for 30 min without the fatigue hitting too hard. Keep doin what you CAN all.

Fighting together

MS has taken so much but again I have found a reason to smile.

Life

Thinking about my life the last 5 years. I went a month no walking after a relapse in 2006 had 7 months of balance training etc I am more than grateful I can still walk unassisted for the most part. I have watched friends with MS not get the chance to walk again and have been there for them every step of the way. I also have friends with MS that I have had to read things for them because their vision never came back to normal unlike mine theirs is still more double than normal. I went to a concert recently now picture this I cant dance but I stood up and danced as much as I could I was laughed at a little but I danced because I could and knew there were so many that wished they could still clap let alone stand up and then also dance so I danced for us all as my husband laughed not realizing how important that was to me. I didnt get mad because I said to myself if ever I cant physically dance I know that day I did make him laugh.

MS exacerbation friendship

Sometimes you just have to be there even in the worst moments my friend has had a relapse she was my mentor and now im learning to be hers wow what a reverse in rolls. Life happens and we keep rollin. Keep doin what you CAN DO ALL!!
I look a lil crazy we been at the hospital 4 hours for her rituxan treatment. Hoping to get her back on her feet and walking again soon or at least able to get out and about. We got the MS walk coming up in April

Happy Blated New Year "ROLLIN TIL THE WHEELS FALL OFF"

Jan 2014 has been better than Jan 2013
cant believe I forgot I had a blog though wow the things MS effects. Looked at my last post it was Feb 2013 wow so much has happened good , bad and good hehe
lets see well I haven't been on steroids since my last flare jan 2013
I changed neurologists
I lost my driving privilege's
I got them back
my son graduated college
I flew to Idaho for the graduation just in Dec
I had a snow day for Christmas since I was in Idaho
my youngest is now 12 going on 16

ok you are wondering what huh driving privilege's lost and got them back well long story but here it goes.
I went to see my neuro in August for some reason she must have been having a bad day she asked me
"how did you get to the appointment today?" I said, "I drove" she says, " Well i don't think with your cognitive disorder (caused by my MS) you should be driving, physically you can drive but mentally i don't believe you should" so she told me she was sending the DMV a form which a few weeks later i got a letter from them saying my privilege's are now suspended. long story short i went and had another cognitive test done which was 3 hours long in comparison to the 1 hour test originally done last July and the results were different they showed i had a mild cog disorder not severe (dementia) which the first test showed o and the tests were done by two different neuropsychologists. I took the new results to my now new doctor (because i fired the one that took my privilege away) the new doctor agreed to send DMV new forms with my new diagnosis then the DMV sent me
1) to take a written test which i could only miss 3
2) to see a hearing officer for test results
3) the results were i scored 100% on my written test
4) the hearing officer scheduled me for a behind the wheel test
5) I passed that
6) I received my license by mail and it doesn't expire until 2018

now you ask well if the doctor didn't think you should drive why did u fight it well with MS we are in a daily fight so i thought to myself I'm gonna fight this and if i am told no then its no and i will move on from there if anything it will make me stronger because i tried. Additionally i put it in Gods hands and my prayers were answered. I asked God to move a mountain and let me drive thru it and wow he did prayers answered.

my last MRI was done a few weeks ago waiting for report from neurologist my newest symptom is neck pain only on the right side and a lil numbness on that side also but the MRI was ordered because it was time for my yearly. I like my new neuro and hope to keep him. My right leg is still a little spastic but the baclofen helps some.

meds i am now on
baclofen 60mg daily
gabapentin 2,500mg daily
clonazepam
nortryptaline (sp)
copaxone injections daily
vitamin D

yes MS still is getting on all my nerves the TN and hugs seem to be more often than not. But I am here and I am still fighting. Rollin til the wheels fall off and then when and if that happens i will figure out how to keep rollin.

Life didn't promise to be wonderful but Im walking so life is FULL once again

That was me a few weeks ago during an exacerbation that effected my vision in turn effecting my walking my legs felt like jello I used my hands to grab onto things but still at times managed to run into things and fall down. I have been behind in my blogging because I was just busy with family and life outside the computer world. This was day 8 of the exacerbation by day 10 I was not walking more than 2 steps without falling, that's when my husband took me to ER and they gave me IV solumedrol they called it a mega dose (if there is one) I was only there about 5 hours then sent home to rest it took about 5 days and my eyesight and walking were 80% better I was happy with that but the 3 days after that I was 100% better ( well as for my walking and vision that is).  I am still on copaxone daily injections and this was only the 3rd relapse in a years time which for me is great so I can't complain especially since I am once again able to take care of myself and Im not wearing the big easy to put on sweats. Look out world im back.

Hello

my walk is tomorrow and I am so fatigued, my face is killing me,my neck hurts. My only hope is that I will be able to walk the one mile this year vs being pushed in my chair. Hope all is well with all my bloggers update and pics of walk coming soon

Understanding "I want my life back"

I think MS Awareness week has brought more sadness to me than it has joy earlier in the week I was all pumped up now im just a lil confused the more awareness I try to make available to family and friends the more response of "Im praying for you" "Are you working out?" "Are you eating right" "Your not disabled go out and walk because you can yes you will get tired but do it" (im going going,going ...so much I am only home maybe 2 days a week and even then im pushing myself ugh) or they say " I saw this 80 year old woman walking the other day" um ok saying that was supposed to make me feel better well it didn't it made me feel worse because I already know someone older than me can walk further without becoming fatigued or off balance when standing too long, or legs weaken when walking or ribs tightening or the temp effecting their bodies. Huh tired Im not tired Im freakin fatigued WTH they are not getting the messege I am so so freakin tired of no one understanding it's now making me sad again and I don't like feeling like this I hate it , I hate MS, I want my life back right now.

· · 38 minutes ago

On to the next chapter

Wow my life has gone 360 degrees in the counterclockwise all I can say is wow. Yesterday I had an appointment at the DMV I spent 15 min there getting my handicap license plate for the last 2 years I have had the permenant placard but I kept forgetting to put it in the window , I decided ok save yourself some energy by getting the liscense plate , so there it is well I got the plate now it's official the world will know my car runs but it is disabled LOL kinda bitter sweet moment for me but hey it's done and guess I should clap and say yeah I DID IT!!! but naw thats one thing that Im still not to happy about just like the wheelchair and walker in the trunk of my sporty SUV.

Tonight is the night

Kinda can't wait for the results of the follow up MRI. I go in the tube tonight will be taking my Ativan as to calm me down so I don't beat the mess out of the walls once I'm slid in. On our way there I felt a little nauseous and clammy never felt like this before o well Mabe it was my cooking so we trucked on to my MRI got there I was fine until they called my name then all heck broke loose. Mam can u lay back and close your eyes me "ok" shortly after me "um wait I gotta get up my nose inches " tech ok well u don't have to do this it will be long and u will be in there awhile. Me "ok well can I call u if I need u?". Tech yes sure I will let u out. Well guys I did it its over and from now on I will say yes iam claustraphobic I don't ever want to do that again blah now the wait is on for results