Showing posts with label ms medications. Show all posts
Showing posts with label ms medications. Show all posts

Monday, April 21, 2014

Parking Problems

Wow I had a crazy handicap spot convo with a man today. Wish u all could have been there boy did I school him after questioning me about why I was using a handicap spot. Hehe he was mad when he started talking when we were done he had a better understanding about MS and life.
Someone had rear ended him 17 years ago paralyzing him from waist down he was still mad and wondered when he would understand the reason why it all happened to him. He said people always tell him everything happens for a reason, but he says he doesn't understand that because there can't be any good reason for his accident. I told him you are alive focus on that and then go from there or u could spend your whole life mad and asking why. I said I didnt ask for this shit I would love to not have a disability and just park and run from a further spot but thats not my life anymore I have to do what I can and parking closer is better for my body especially on hot days because I may walk into the place im going to just fine but then when im done walking around in the place I may go outside and if it's too hot my legs may decide they don't want to make it all the way to the car because they are weak because now I have been overheated which in MS is called an intolerance to heat. Any way told him my whole story he felt bad. But it was a cool convo. We talked bout 30 min even compared symptoms he was suprised I also had PN like him and spasticity and that we were on baclofen and gabapentin and I said my medicine cabinet knows im disabled he laughed. His car was so nice I wanted to be a smart mouth and think like he did when he first saw me trying to get into my car (him in his car waving at me and saying that's a handicap spot you took) and say wow I guess u got a huge settlement hehe but thats not me but hey I thought it lol I got home and was mad I didnt get his info seems he needs a friend. Would be nice just to be there for him to rant we need that.

Wednesday, April 16, 2014

Today was a good day

Today was a good day until I went in the dressing room to try on a cute outfit and well all I see is bruises on my legs ugh guess I will be in Capri pants all summer on a good note I was happy I could shop for 30 min without the fatigue hitting too hard. Keep doin what you CAN all.

Sunday, March 23, 2014

Baby Girls day MS in timeout :)

Had such a good time a couple of weeks ago i met up with girlfriends that I had met in an MS chat room called MS is BS about 3 years ago from the first day we met online we just clicked. Its hard to find someone that understands exactly what your goin through when dealing with a chronic illness but wow I have found 5 people that get ME and get MS. We decided we would do a baby girl photo shoot and it was fun. The hubbies were able to meet for the first time and the kids got to know each other and even roasted marshmallows. MS=Meeting Sensational people. We have met up a few times since we first met 3 years ago but I think they would all agree this day was one of the best.
This is just an example of the photos we took
The pic of us without the baby girl shirts is a pic of the first time we met.  Haha we make MS look good. 

Monday, February 4, 2013

Life didn't promise to be wonderful but Im walking so life is FULL once again

That was me a few weeks ago during an exacerbation that effected my vision in turn effecting my walking my legs felt like jello I used my hands to grab onto things but still at times managed to run into things and fall down. I have been behind in my blogging because I was just busy with family and life outside the computer world. This was day 8 of the exacerbation by day 10 I was not walking more than 2 steps without falling, that's when my husband took me to ER and they gave me IV solumedrol they called it a mega dose (if there is one) I was only there about 5 hours then sent home to rest it took about 5 days and my eyesight and walking were 80% better I was happy with that but the 3 days after that I was 100% better ( well as for my walking and vision that is).  I am still on copaxone daily injections and this was only the 3rd relapse in a years time which for me is great so I can't complain especially since I am once again able to take care of myself and Im not wearing the big easy to put on sweats. Look out world im back.

Tuesday, July 24, 2012

Trigeminal Neuralgia - Conditions - For Patients - Neurosurgery - University of Rochester Medical Center

Trigeminal Neuralgia - Conditions - For Patients - Neurosurgery - University of Rochester Medical Center

today got a pain in my left index finger I thought o ok guess just something else goin on then looked online and found this information. Wow if you have TN it is common to have pain in your left index finger. Ugh I knew I had TN because docs already diagnosed that but this added to that if freakin very painful.

Monday, January 16, 2012

My Meds

I started with betaseron the first year kept having progression so doc switched me to Copaxone then copaxone with IV steroids for 6months to end a relapse
Xanax
Gabapentin
Norco
Depakote
Tamazapam