Thursday, February 27, 2014

Life

Thinking about my life the last 5 years. I went a month no walking after a relapse in 2006 had 7 months of balance training etc I am more than grateful I can still walk unassisted for the most part. I have watched friends with MS not get the chance to walk again and have been there for them every step of the way. I also have friends with MS that I have had to read things for them because their vision never came back to normal unlike mine theirs is still more double than normal. I went to a concert recently now picture this I cant dance but I stood up and danced as much as I could I was laughed at a little but I danced because I could and knew there were so many that wished they could still clap let alone stand up and then also dance so I danced for us all as my husband laughed not realizing how important that was to me. I didnt get mad because I said to myself if ever I cant physically dance I know that day I did make him laugh.

Wednesday, February 19, 2014

My mommy has MS

Woke up today lil fatigued but I paced my day just right took a nap for an hour and a half then I was ready for round two the 12 year old got out of school early today those days are always the hardest for me fatigue wise but I had cleaning activities to keep him busy while I just relaxed. Hubby made dinner now off to martial arts class with the pre-teen. I feel refreshed since I have only been up and busy for 4 hours. Hope everyone's day was paced well and they were able to get done what needed to be done without too many symptoms.

Sunday, February 16, 2014

Parents Day Out in spite of MS

5 Years #flipagram made with @flipagram Music: Pharrell Williams - Happy (from "DespicabWilsonle Me 2") http:lipagram.com/f/RDGJIBUq84
the pic of me in the drivers seat before hitting the road to Los Angeles to see Charlie Wilson and Keith Sweat. For a few i forgot about. MS and PN o and TN well that was until i tried a wine cooler oops forgot i cant drink alcohol anymore it woke up every nerve in my body.o well i am learning to have fun at events where everyone else is feeling a little good because they had a nice lil drink before going to a concert the funny thing is i cant dance but then i thought who cares shoot these people just dont know im glad to still be standing on my own two feet though off beat i still danced for myself and my fellow MS warriors that no http://shop.shemarmoore.com/ longer have the ability to stand, walk or let alone dance. I danced for us all. Wearing my baby girl shirt i got from shemar moore web site 

Monday, February 3, 2014

MS exacerbation friendship

Sometimes you just have to be there even in the worst moments my friend has had a relapse she was my mentor and now im learning to be hers wow what a reverse in rolls. Life happens and we keep rollin. Keep doin what you CAN DO ALL!!
I look a lil crazy we been at the hospital 4 hours for her rituxan treatment. Hoping to get her back on her feet and walking again soon or at least able to get out and about. We got the MS walk coming up in April