I think MS Awareness week has brought more sadness to me than it has joy earlier in the week I was all pumped up now im just a lil confused the more awareness I try to make available to family and friends the more response of "Im praying for you" "Are you working out?" "Are you eating right" "Your not disabled go out and walk because you can yes you will get tired but do it" (im going going,going ...so much I am only home maybe 2 days a week and even then im pushing myself ugh) or they say " I saw this 80 year old woman walking the other day" um ok saying that was supposed to make me feel better well it didn't it made me feel worse because I already know someone older than me can walk further without becoming fatigued or off balance when standing too long, or legs weaken when walking or ribs tightening or the temp effecting their bodies. Huh tired Im not tired Im freakin fatigued WTH they are not getting the messege I am so so freakin tired of no one understanding it's now making me sad again and I don't like feeling like this I hate it , I hate MS, I want my life back right now.
Showing posts with label understanding. Show all posts
Showing posts with label understanding. Show all posts
Thursday, March 15, 2012
Monday, February 20, 2012
In denial
The wheelchair my doctor ordered was just delivered it was ordered to help me in times of fatigue and I still want to get out and do things.
Like the mall for Christmas shopping or the amusement park with our son without having to rent a 80.00 scooter wow that was an expensive trip to Disneyland that year.
Well any way why was I happy hubby was taking a lil nap and our lil one was at his cousins when it was delivered and he wouldn't see it?
The answer to that question I just don't have but then on the other hand I complain because my family sometimes acts as if I don't have a disability.
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