Parking Problems

Wow I had a crazy handicap spot convo with a man today. Wish u all could have been there boy did I school him after questioning me about why I was using a handicap spot. Hehe he was mad when he started talking when we were done he had a better understanding about MS and life.
Someone had rear ended him 17 years ago paralyzing him from waist down he was still mad and wondered when he would understand the reason why it all happened to him. He said people always tell him everything happens for a reason, but he says he doesn't understand that because there can't be any good reason for his accident. I told him you are alive focus on that and then go from there or u could spend your whole life mad and asking why. I said I didnt ask for this shit I would love to not have a disability and just park and run from a further spot but thats not my life anymore I have to do what I can and parking closer is better for my body especially on hot days because I may walk into the place im going to just fine but then when im done walking around in the place I may go outside and if it's too hot my legs may decide they don't want to make it all the way to the car because they are weak because now I have been overheated which in MS is called an intolerance to heat. Any way told him my whole story he felt bad. But it was a cool convo. We talked bout 30 min even compared symptoms he was suprised I also had PN like him and spasticity and that we were on baclofen and gabapentin and I said my medicine cabinet knows im disabled he laughed. His car was so nice I wanted to be a smart mouth and think like he did when he first saw me trying to get into my car (him in his car waving at me and saying that's a handicap spot you took) and say wow I guess u got a huge settlement hehe but thats not me but hey I thought it lol I got home and was mad I didnt get his info seems he needs a friend. Would be nice just to be there for him to rant we need that.

Fighting together

MS has taken so much but again I have found a reason to smile.

Hello

my walk is tomorrow and I am so fatigued, my face is killing me,my neck hurts. My only hope is that I will be able to walk the one mile this year vs being pushed in my chair. Hope all is well with all my bloggers update and pics of walk coming soon

Pain in the neck

One symptom I have is severe neck pain and yesterday it had me flat on my back I have been only getting a few hours sleep the past few days because I have been in so much pain the Norco every 4 hours is not helping. I really wish a CURE would be found tomorrow. I miss sleep , I miss my old body.

Understanding "I want my life back"

I think MS Awareness week has brought more sadness to me than it has joy earlier in the week I was all pumped up now im just a lil confused the more awareness I try to make available to family and friends the more response of "Im praying for you" "Are you working out?" "Are you eating right" "Your not disabled go out and walk because you can yes you will get tired but do it" (im going going,going ...so much I am only home maybe 2 days a week and even then im pushing myself ugh) or they say " I saw this 80 year old woman walking the other day" um ok saying that was supposed to make me feel better well it didn't it made me feel worse because I already know someone older than me can walk further without becoming fatigued or off balance when standing too long, or legs weaken when walking or ribs tightening or the temp effecting their bodies. Huh tired Im not tired Im freakin fatigued WTH they are not getting the messege I am so so freakin tired of no one understanding it's now making me sad again and I don't like feeling like this I hate it , I hate MS, I want my life back right now.

· · 38 minutes ago

Busy Day Insomnia

Tried to go to bed early last night because I knew I was going to get beautified at the salon early morning and the dentist late afternoon. Well MS had another plan for my day woke up at 3 am with calf cramps the baclofen helps but I guess sometimes it just doesnt do it's job. So here I sit 6 am and still awake. What a long day this will be my neck is on fire my legs are cramping and my spine hurts this day has to get better as time goes on. But I do know that with my MS theres no tellin how it will go. Until my fingers hit the keyboard again have a blessed day all. Keep doin what YOU CAN!!!

On to the next chapter

Wow my life has gone 360 degrees in the counterclockwise all I can say is wow. Yesterday I had an appointment at the DMV I spent 15 min there getting my handicap license plate for the last 2 years I have had the permenant placard but I kept forgetting to put it in the window , I decided ok save yourself some energy by getting the liscense plate , so there it is well I got the plate now it's official the world will know my car runs but it is disabled LOL kinda bitter sweet moment for me but hey it's done and guess I should clap and say yeah I DID IT!!! but naw thats one thing that Im still not to happy about just like the wheelchair and walker in the trunk of my sporty SUV.

MS

http://video.about.com/ms/Multiple-Sclerosis.htm

ME Poem

ME
is it me or do u not see
Is it me or can I be imagining this
Is it me or did my life change in an instant
Is it me or did I really retire at age 40
Is it me or is it wrong for me to ask for 30 min of ur time no I'm not dying but I do feel every moment is a gift
Is it me or if I had an illness that ended in death would there be more awareness made
Is it me or is the burning ever goin away
Is it me or is there a snake wraped around my chest squeezing me til I feel I can't breath
Is it me or am I really walking on pins and needles
Is it me or does my neck really snap crackle POP like rice crispies but painful
Is it me or do I really need a handicap spot to park
Is it me or do I have to avoid heat and cold
Is it me or are there more bad days than good.
Is it me or is the ground really saying hello to me today
Is it me or am I too strong for this disease for others to realize how much I hurt
Is it me or has a CURE for MS been found yet???