In denial

The wheelchair my doctor ordered was just delivered it was ordered to help me in times of fatigue and I still want to get out and do things.

Like the mall for Christmas shopping or the amusement park with our son without having to rent a 80.00 scooter wow that was an expensive trip to Disneyland that year.

Well any way why was I happy hubby was taking a lil nap and our lil one was at his cousins when it was delivered and he wouldn't see it?

The answer to that question I just don't have but then on the other hand I complain because my family sometimes acts as if I don't have a disability.

   I have been having alot of twitching in my hands not my usual tremors, pain in my ribs again and a real hot back kinda feels like someone left the heating pad on high and put it on my back, chocking in my sleep, falling asleep and waking straight up when sitting still for long periods, arm twitching.

   I decided I had enough after 5 days maybe I should see the doctor to see if anything could be done. Well I did see the doctor and as usual I got the same response "Well u know everything you described is classic MS symptoms" There is really not more than what I have done for you that I can do that will make you more comfortable there are no visual problems so no need to start you on steroids because it may not be a relapse it may just be exactly what is known about MS symptoms that come along with the package when your dealing with nerves.

I did get up the nerve to ask for a wheelchair to help with the constant fatigue he did agree and one has been ordered. The walker is good but when walking makes you fatigued it doesnt help much. I will be able to do my MS walk in style

   Now to get up the nerve to let my husband know his wife NEEDS a chair for FATIGUE (he always says well if your tired go take a nap)

    ugh trying to explain to someone that does not have MS is such a hard thing to do when it comes to invisable symptoms. I have tried having him watch the videos EVEN MY VIDEO I MADE he has not seen any of them yet. His theory is it wont change things and if you didn't know you had MS you would not be saying you have all these symptoms. Before you knew you just had a few symptoms now you have so many. I try explaining that I had 8 attacks and with each attack came the new symptoms not sure if he understood that.

I am going with the hope that one day he will meet me half way on this or we may have to think about parting ways.

I have now decided I will not go to the doctors unless it's a visit they initiated or I have visual problems to get help or my annual MRI's.

I fell asleep last night lookin at stuff to buy on Groupon when I woke up realized I almost purchased something oops time to take the card info off

Ahotmess With MS Awareness video

Making New Memories

Making New Memories

http://main.nationalmssociety.org/site/TR?pg=team&fr_id=18518&team_id=272792

Go A-team Inland Empire Walk MS 2012

Pens and Needles

I know Jesus had to hurt worse than I do today but wow does this hurt my spine,my face,my hands,my ribs,my back etc hurt like heck just can't be normal for one person to be in so much pain. Made a appointment for Friday to have a look to be sure this is all nerve or MS pain and to see if I need to be given something stronger for the pain OUCH. Anyhow how are u today? because well me I'm not feelin to hot.

Hugs that r not fun

Had a great day with an old friend today went to palm springs for lunch and lil gambling wow guess I did too much few hours into it all my ribs tightened my back felt hot ,legs started cramping now mind u when I left home the TN was acting up and my right leg was already spastic needless to say we came home without goin to the movies once again MS has stuck its head in where it was not wanted.

MRI AND VIT D RESULTS

since the vit D was 19 doc has ordered 50,000 IU of vit D by prescription weekly for one month. The Neuro report on this months MRI says no changes on MRI since June 2011 so no need to change therapy's again will stay on copaxone for now. Lot's of bone pain again today, hand and calf cramps the baclofen has just been increased will see if by the end of the week the cramps are better. I sure hope so. I made dinner tonight well kinda still practicing lol it was edible and not toxic today but would have been better if I remembered to make all the meal not just the meat, whoever invented the canned veggie will always be a winner in my book. Still better than yesterdays burnt vegetable's and frozen chicken fingers.

Tub experience

Wow I had taken a 5 hour nap yesterday but why did I fall asleep in the tub with the water still runnin I woke up when my hair got wet :( not a good experience lil frightening I would say wow

Remember you are not alone

I went to a great support group meeting yesterday and what a coincidence they talked about depression it was perfect for me and it reminded me that depression sometimes comes with this disease and sometimes u may need a lil help and its ok.... Before I was diagnosed with MS I was being treated for bipolar disorder for about 12 years and sometimes I kinda forget I have two illnesses and I let the one that is my personality kinda take over and that's ok but when it gets out of control I need to remember to take control of it so as of today I'm in a battle to conquer both no more skipping bipolar meds because the MS pain is too bad. Have a good day all enjoy the super bowl I will let out some stress yelling at my TV :)

MS

http://video.about.com/ms/Multiple-Sclerosis.htm

Tonight is the night

Kinda can't wait for the results of the follow up MRI. I go in the tube tonight will be taking my Ativan as to calm me down so I don't beat the mess out of the walls once I'm slid in. On our way there I felt a little nauseous and clammy never felt like this before o well Mabe it was my cooking so we trucked on to my MRI got there I was fine until they called my name then all heck broke loose. Mam can u lay back and close your eyes me "ok" shortly after me "um wait I gotta get up my nose inches " tech ok well u don't have to do this it will be long and u will be in there awhile. Me "ok well can I call u if I need u?". Tech yes sure I will let u out. Well guys I did it its over and from now on I will say yes iam claustraphobic I don't ever want to do that again blah now the wait is on for results 

Fatigue

To start off my day I got bad news my oldest did not do well at his big track meet he loves track and right now his heart is broken and there is nothing I can do to fix it. On the other hand our cousin that had bone cancer and had the cadaver bone put in her leg has been given the ok to get back on the soccer field no games but she can practice. :) MS wise Wow I was so fatigued today. I went to a birthday party yesterday I think I did too much I was the old me for a few hours. I took pictures somethin I used to do everyday it was so much fun feelin normal again and I knew I would pay for it today my body is killing me I rested all day today that helped some but now I'm walking weird well a lil drunk and my eyes feel weird so I will use tomorrow to rest again. I hope you are all staying well and rested.

A day in the life

Today was kinda nice only a few symptoms got on my nerves so for that I am thankful. On the other hand my 10 year old is spoiled rotten so Im working to unspoil him and this mess is hard Me "Clean your room" Quincy "so you want me to put up everything" Me " What part of clean do u not understand" wow being a mom is so much fun then add the fatigue of MS to that and wow what a job I have the oldest on the other hand has another track meet tomorrow please pray for him that he runs faster than his fastest time.

lab results

Vit D level went up from 17-19 but still not normal doc will let me know if she's prescribing the 50,000IU again or what's next ugh I can never get this mess to normal level and with the heat intolerance it's very hard because im inside all day.

New day new symptom

My neck has been burning for the past few weeks tonight is real bad. I took a 4 hour nap today u would think I would feel rested but no so fatigued. I have been scheduled for my MRI follow up of my brain and spine hoping the results show no progression.

follow up visit

saw the neuro today you know thay did all the normal evaluations had me walk the line, put my arms straight out in front of me went over my list of new symptoms since last visit in june, ordered my follow up MRI of the brain and spine. I have been prescribed baclofen for the cramps in my calfs and my hands I hope this helps because the cramps are messing with my sleep schedule. I ran into people I used to work with today 5 of them to be exact and wow slap in the face seeing them in their uniforms and me in plain clothes just not supposed to be how it is. But hey I have been off work over 2 years now I gotta take care of me , it still hurts seeing them and thinking of how I used to work and the fun we had together goin to lunch, christmas parties, pay bonuses.  It was a busy day I also had my mammo (ladies go out and get it done).

I have so many reasons to smile

Watch "Quincy tribute to MJ" on YouTube
My youngest gettin his groove on

Paul Robertson - Track and Field Profile

Paul Robertson - Track and Field Profile

Cramps

I have had calf cramps the last few weeks doc increased the norco to help and it has helped only one problem I now have thigh cramps so weird. I'm not letting it stop me my god sons bday party is today and me and my lil guy are goin to party. My oldest has a big track meet today I pray God gives him wings and he flies past that finish line. So far 4th place in the 400meters. He's got to run faster to earn more money next year please pray for him. Thanks